Patients Crusade For Access To Their Medical Device Data

Patients Crusade For Access To Their Medical Device Data
May 28, 2012
http://www.npr.org/blogs/health/2012/05/28/153706099/patients-crusade-for-access-to-their-medical-device-data

even though Campos’ ICD (implantable cardioverter-defibrillator) can wirelessly transmit data twice a day about his heart and the ICD itself, that information goes only to his doctor.
Campos has to make an appointment and ask for a printout.
And that, he says, just doesn’t seem fair.

“It’s my body, my life, my health. Why shouldn’t I have access to do as I please with this data?” Campos says.

Steinhaus says, in principle, the company is fine with giving patients their data directly.
The problem is how to format it so it’s useful to everyone.
As is, the raw data is highly technical. Would patients understand it?