Online Health Searches Aren’t Always Confidential

Online Health Searches Aren’t Always Confidential
June 08, 2015
http://www.npr.org/sections/alltechconsidered/2015/06/08/412893469/online-health-searches-arent-always-confidential

On who these hidden parties are, and why they’re interested
Most of the times it’s advertisers — so these are your marquee names, your Googles and Facebooks.
But I also found kind of further down there a fair amount of tracking going on by data brokers. So these are companies like Experian and Acxiom. And their core business model is not advertising per se, but selling information about you to whoever wants to buy it.

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Keeping genetic information completely secure is impossible

How to Hide Your Genome
Science. 16 February 2014
http://news.sciencemag.org/biology/2014/02/how-hide-your-genome

As the cost of genetic sequencing plummets, experts believe our genomes will help doctors detect diseases and save lives. But not all of us are comfortable releasing our biological blueprints into the world. Now, cryptologists are perfecting a new privacy tool that turns genetic information into a secure yet functional format. Called homomorphic encryption and presented here today at the annual meeting of AAAS, which publishes Science, the method could help keep genomes private even as genetic testing shifts to cheap online cloud services.

John Wilbanks, a privacy expert at Sage Bionetworks in Seattle, Washington, says that while cutting-edge techniques like homomorphic encryption will improve privacy, keeping genetic information completely secure is impossible.

Patients Lead The Way As Medicine Grapples With Apps

Patients Lead The Way As Medicine Grapples With Apps 
June 18, 2013
http://www.npr.org/blogs/health/2013/06/18/192777704/patients-lead-the-way-as-medicine-grapples-with-apps

Doctors aren’t sure which of the roughly 40,000 available apps do what they claim to do.

The FDA is working on regulations for the mobile medical apps that can turn a mobile platform into a medical device.
It does not plan to regulate diet or exercise apps.
A few private companies are stepping in to do that task.
Ben Chodor started Happtique, a company that reviews apps and gives those that at least perform correctly a seal of approval.

It’s the Wild West and someone needs to come in and at least help the consumers and the clinicians and the payers sort through the forty thousand-plus apps that are already out there,” says Chodor.

And many unresolved questions swirl around the data collected by medical apps

Yes, There’s Probably A Medical App For That
August 10, 2012
http://www.npr.org/blogs/health/2012/08/10/158453615/yes-theres-probably-a-medical-app-for-that

Making Babies? Yep, There’s An App For That
October 11, 2013
http://www.npr.org/templates/story/story.php?storyId=232238899
Dozens of fertility self-tracking apps have popped up on the market in the last few years.
These apps assume a woman is ovulating regularly. But if you’re having periods every two to three months, you may not be ovulating at all.

Keyword: Quantified Self movement

Smartphones Help Bridge Gaps In Electronic Medical Records

Smartphones Help Bridge Gaps In Electronic Medical Records
June 17, 2013
http://www.npr.org/2013/06/17/192596386/smartphones-help-bridge-gaps-in-electronic-medical-records

Medicare Blue Button, a computer program that allows patients to download their medical history into a simple text file on their smartphones and personal computers. Then, third-party applications that you download help organize this information.
https://www.mymedicare.gov

Stratis Health, a non-profit in Minnesota
http://www.stratishealth.org
Leading collaboration and innovation in health care quality and safety

Health Privacy Project at the Center for Democracy and Technology
https://www.cdt.org/issue/health-privacy

when doctors and health plans store your electronic medical information, it’s covered by federal privacy and security rules – rules that don’t necessarily extend to your smartphone.

related:
http://www.npr.org/blogs/health/2015/03/06/388999602/sharing-patient-records-is-still-a-digital-dilemma-for-doctors

How Tech Is Bringing Healthcare Into The 21st Century
The Motley Fool. Feb 13, 2016

ehr123

Google Execs Talk Privacy, Security In ‘The New Digital Age’

Google Execs Talk Privacy, Security In ‘The New Digital Age’
April 22, 201312
http://www.npr.org/blogs/alltechconsidered/2013/04/22/178424347/google-execs-talk-privacy-and-security-in-the-new-digital-age

there’s really no delete button

data permanence

 

Google Execs Say ‘The Power Of Information Is Underrated’
April 23, 2013
http://www.npr.org/blogs/alltechconsidered/2013/04/23/178620215/google-execs-say-the-power-of-information-is-underrated

doctors often use jargon that is difficult to understand on first hearing

Should we be recording our phone calls?
Jan. 21, 2013
http://www.bbc.co.uk/news/business-21125291
New services that enable consumers and small businesses to record telephone calls, store them to “the cloud” and then read transcripts or carry out key-word searches of the audio database, are potentially revolutionising the way we treat the spoken word.

doctors and other professionals often use jargon that is difficult to understand on first hearing